Family Resources - Find People and Professionals in the FXTAS Community
With FXTAS being a relatively new disorder, there may not appear to be as many services and professionals available as there is for other medical conditions. However, a number of support services and informational materials, which address symptoms common to other medical conditions such as Parkinson’s, may be of value to those impacted by FXTAS. The National Fragile X Foundation is on the lookout for these types of services and will continually update this list. In the meantime, we would welcome reader’s recommendations.
As you may have already discovered, the National Fragile X Foundation offers resources in the form of free informational materials, referrals to clinics and specialists and a community network of other families dealing with FXTAS.
National Fragile X Foundation Resources
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Referrals to Fragile X Clinics, Other Specialists and Peer Contacts
Email: Treatment@FragileX.org
Phone: 1-800-688-8765 -
Special Topics Brochure Series including FXTAS
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My Fragile X Community (Look for Forums devoted to FXTAS)
